Description:

To collect and maintain BreastScreen data also for reporting.

Additional information:

Have_(encrypted)_NHI No
Personally identifiable (e.g. linked to NHI numbers) and longitudinal or aggregated (e.g. for planning, clinical research etc.)? Yes, NHI is the primary key. These are done outside the database, ie in reporting.
Volume of data (e.g. how many records) Since when? Nearly 80,000 records from 2005 (original data migrated from other service)
Purpose and governance including ethics committee/patient consent mechanisms. Q: How do you get around ethics/privacy issues with your data sources? Esp. DHBs? We had privacy impact assessment within DHB. Patient need to sign consent form for us collecting information.
Scope Regional
Does the data contain diagnoses and clinical outcomes? Does the data contain procedures, device information and medication for therapy? Does this data set have cost / price data? Yes, Has procedures, no device information. Not much medication information. No cost/price data.
Presence of Data dictionary? Column headings in Excel or any kind of data model if residing in a relational database (e.g. Access, SQL Server, Oracle etc.) Data Dictionary not provided by vendor, however we try to query SQL database.
Linked (or linkable) to other datasets within your organisation or across the Sector Linked to NZHIS, PACS.
How often does this data set get updated? Daily? Weekly? Monthly? Quarterly? Yearly? Anytime during business hours.
Indication of data quality (e.g. missing values, duplications, inconsistencies etc.). Q: Audits? How do you ensure the data is valid and correct? We have policies and procedures to monitor and maintain data quary. We run quereis and reports and also audits.
Brief info about the systems and processes used to collect/manage data. Q: Where the data is collected, in what form, and accessibility? From patient forms and conversation with patients and GP referals.
Data format, e.g., data structure, data types, and storage form (relational database, Excel, csv, etc.). It is relational database and data in all formats.
How well the data is structured, e.g. free text VS coded text VS pick-list (drop-down list) Mostly in drop-down list, only a few in free text.
How quickly can the data be made available from time of request and how old is the data once it is made available Data is available as soon as it is collected. Not sure what how old you mean? We don't delete any data.