Description:

Renal Clinical System

Additional information:

Have_(encrypted)_NHI Yes
Personally identifiable (e.g. linked to NHI numbers) and longitudinal or aggregated (e.g. for planning, clinical research etc.)? Yes
Volume of data (e.g. how many records) Since when? thousands
Purpose and governance including ethics committee/patient consent mechanisms. Q: How do you get around ethics/privacy issues with your data sources? Esp. DHBs? All Ethics/Access issues are primarly handled by Awhina Research & Management group otherwise via the company lawyer
Scope Provider
Does the data contain diagnoses and clinical outcomes? Does the data contain procedures, device information and medication for therapy? Does this data set have cost / price data? Has procedures/diagnoses and some clinical outcomes but with non internationally -standardised codesets
Linked (or linkable) to other datasets within your organisation or across the Sector Yes
How often does this data set get updated? Daily? Weekly? Monthly? Quarterly? Yearly? Daily
Data format, e.g., data structure, data types, and storage form (relational database, Excel, csv, etc.). Relational Database
How well the data is structured, e.g. free text VS coded text VS pick-list (drop-down list) Structured
How quickly can the data be made available from time of request and how old is the data once it is made available HG: reseasonably quick - Researchers requiring identifiable data will usually need approval from an Ethics Committee and WDHB Knowledge Centre (who facilitate privacy compliance and ethics approval for all research requests).